We are a small partnership of researchers and members of the public in the United States who are interested in the rapidly evolving science of the new coronavirus and COVID-19 (Corona Virus Disease-2019). We are looking to convene a small group of individuals who might be interested in exploring ways to help the general public get more involved in this research.
Hugo Campos
I am a person living with hypertrophic cardiomyopathy, a relatively common type of genetic heart disease. I care about participatory medicine, patient autonomy, and access to my health data. I am a Participant Ambassador for the All of Us, a research program from the National Institutes of Health (NIH).
Kathy Kim
I am a professor at University of California Davis, Betty Irene Moore School of Nursing and School of Medicine-Public Health Sciences. I care about participatory research. My research is about designing great technology and using it to improve people’s health and how we deliver healthcare.
Stacey Tinianov
I am a patient advocate and cancer survivor in the San Francisco Bay area. I believe in engaging people in their own health journeys through education, information access and person-centered design. My goal is to build bridges between science, industry, policy and people to improve research and delivery of care.